Quality of life in patients with treated and clinically stable Wilson's disease
Identifieur interne : 001443 ( Main/Exploration ); précédent : 001442; suivant : 001444Quality of life in patients with treated and clinically stable Wilson's disease
Auteurs : Marina Svetel [Serbie] ; Tatjana Pekmezovi [Serbie] ; Aleksandra Tomi [Serbie] ; Nikola Kresojevi [Serbie] ; Aleksandra Potrebi [Serbie] ; Rada Ješi [Serbie] ; Vladimir S. Kosti [Serbie]Source :
- Movement Disorders [ 0885-3185 ] ; 2011-07.
Descripteurs français
- Pascal (Inist)
- Wicri :
English descriptors
- KwdEn :
- Adult, Analysis of Variance, Copper, Cross-Sectional Studies, Disability Evaluation, Female, Hepatolenticular Degeneration (psychology), Hepatolenticular Degeneration (therapy), Human, Humans, Male, Mental Status Schedule, Middle Aged, Nervous system diseases, Quality of Life, Quality of life, Questionnaires, Regression Analysis, Severity of Illness Index, Treatment, Wilson disease, quality of life.
- MESH :
- psychology : Hepatolenticular Degeneration.
- therapy : Hepatolenticular Degeneration.
- Adult, Analysis of Variance, Cross-Sectional Studies, Disability Evaluation, Female, Humans, Male, Mental Status Schedule, Middle Aged, Quality of Life, Questionnaires, Regression Analysis, Severity of Illness Index.
Abstract
Health‐related quality of life (HRQoL) in Wilson's disease (WD) has not been extensively studied. Therefore, the purpose of this cross‐sectional study was to identify clinical and demographic factors influencing HRQoL in 60 treated, clinically stable patients with WD using a generic questionnaire, the Medical Outcomes Study Short‐Form 36‐Item Health Survey (SF‐36). The level of disability and grading of WD multisystemic manifestations were assessed by the Global Assessment Scale for WD (GAS for WD). The Mini Mental State Examination (MMSE) and the 21‐item Hamilton Depression Rating Scale (HDRS) scoring were also applied by the same trained interviewers. Lower scores on the SF‐36 domains were found in patients with neurological compared with those with a predominantly hepatic form of WD. The HRQoL of patients with WD and psychiatric symptoms was also lower than that of those without them. Finally, significant inverse correlations were obtained between the various SF‐36 domains and all the following: period of latency from the first symptoms/signs appearance and treatment initiation, MMSE and HDRS scores, and different domains of the GAS for WD. © 2011 Movement Disorder Society
Url:
DOI: 10.1002/mds.23608
Affiliations:
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Le document en format XML
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Kosti</name><affiliation wicri:level="1"><country xml:lang="fr">Serbie</country><wicri:regionArea>Institute of Neurology CCS, School of Medicine, University of Belgrade, Belgrade</wicri:regionArea><wicri:noRegion>Belgrade</wicri:noRegion></affiliation></author></analytic><monogr></monogr><series><title level="j">Movement Disorders</title><title level="j" type="abbrev">Mov. Disord.</title><idno type="ISSN">0885-3185</idno><idno type="eISSN">1531-8257</idno><imprint><publisher>Wiley Subscription Services, Inc., A Wiley Company</publisher><pubPlace>Hoboken</pubPlace><date type="published" when="2011-07">2011-07</date><biblScope unit="vol">26</biblScope><biblScope unit="issue">8</biblScope><biblScope unit="page" from="1503">1503</biblScope><biblScope unit="page" to="1508">1508</biblScope></imprint><idno type="ISSN">0885-3185</idno></series><idno type="istex">93810ED064492CA375A5B6018F714D28832C314F</idno><idno type="DOI">10.1002/mds.23608</idno><idno type="ArticleID">MDS23608</idno></biblStruct></sourceDesc><seriesStmt><idno type="ISSN">0885-3185</idno></seriesStmt></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adult</term><term>Analysis of Variance</term><term>Copper</term><term>Cross-Sectional Studies</term><term>Disability Evaluation</term><term>Female</term><term>Hepatolenticular Degeneration (psychology)</term><term>Hepatolenticular Degeneration (therapy)</term><term>Human</term><term>Humans</term><term>Male</term><term>Mental Status Schedule</term><term>Middle Aged</term><term>Nervous system diseases</term><term>Quality of Life</term><term>Quality of life</term><term>Questionnaires</term><term>Regression Analysis</term><term>Severity of Illness Index</term><term>Treatment</term><term>Wilson disease</term><term>quality of life</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Hepatolenticular Degeneration</term></keywords><keywords scheme="MESH" qualifier="therapy" xml:lang="en"><term>Hepatolenticular Degeneration</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adult</term><term>Analysis of Variance</term><term>Cross-Sectional Studies</term><term>Disability Evaluation</term><term>Female</term><term>Humans</term><term>Male</term><term>Mental Status Schedule</term><term>Middle Aged</term><term>Quality of Life</term><term>Questionnaires</term><term>Regression Analysis</term><term>Severity of Illness Index</term></keywords><keywords scheme="Pascal" xml:lang="fr"><term>Cuivre</term><term>Homme</term><term>Maladie de Wilson</term><term>Pathologie du système nerveux</term><term>Qualité de vie</term><term>Traitement</term></keywords><keywords scheme="Wicri" type="topic" xml:lang="fr"><term>Cuivre</term><term>Homme</term></keywords></textClass><langUsage><language ident="en">en</language></langUsage></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Health‐related quality of life (HRQoL) in Wilson's disease (WD) has not been extensively studied. Therefore, the purpose of this cross‐sectional study was to identify clinical and demographic factors influencing HRQoL in 60 treated, clinically stable patients with WD using a generic questionnaire, the Medical Outcomes Study Short‐Form 36‐Item Health Survey (SF‐36). The level of disability and grading of WD multisystemic manifestations were assessed by the Global Assessment Scale for WD (GAS for WD). The Mini Mental State Examination (MMSE) and the 21‐item Hamilton Depression Rating Scale (HDRS) scoring were also applied by the same trained interviewers. Lower scores on the SF‐36 domains were found in patients with neurological compared with those with a predominantly hepatic form of WD. The HRQoL of patients with WD and psychiatric symptoms was also lower than that of those without them. Finally, significant inverse correlations were obtained between the various SF‐36 domains and all the following: period of latency from the first symptoms/signs appearance and treatment initiation, MMSE and HDRS scores, and different domains of the GAS for WD. © 2011 Movement Disorder Society</div></front></TEI><affiliations><list><country><li>Serbie</li></country></list><tree><country name="Serbie"><noRegion><name sortKey="Svetel, Marina" sort="Svetel, Marina" uniqKey="Svetel M" first="Marina" last="Svetel">Marina Svetel</name></noRegion><name sortKey="Jesi, Rada" sort="Jesi, Rada" uniqKey="Jesi R" first="Rada" last="Ješi">Rada Ješi</name><name sortKey="Kosti, Vladimir S" sort="Kosti, Vladimir S" uniqKey="Kosti V" first="Vladimir S." last="Kosti">Vladimir S. Kosti</name><name sortKey="Kresojevi, Nikola" sort="Kresojevi, Nikola" uniqKey="Kresojevi N" first="Nikola" last="Kresojevi">Nikola Kresojevi</name><name sortKey="Pekmezovi, Tatjana" sort="Pekmezovi, Tatjana" uniqKey="Pekmezovi T" first="Tatjana" last="Pekmezovi">Tatjana Pekmezovi</name><name sortKey="Potrebi, Aleksandra" sort="Potrebi, Aleksandra" uniqKey="Potrebi A" first="Aleksandra" last="Potrebi">Aleksandra Potrebi</name><name sortKey="Tomi, Aleksandra" sort="Tomi, Aleksandra" uniqKey="Tomi A" first="Aleksandra" last="Tomi">Aleksandra Tomi</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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